{"id":13019,"date":"2025-02-10T22:10:02","date_gmt":"2025-02-10T22:10:02","guid":{"rendered":"https:\/\/bofillmir.cl\/?p=13019"},"modified":"2026-02-16T22:30:23","modified_gmt":"2026-02-16T22:30:23","slug":"what-we-talk-when-we-talk-about-orphan-drugs-in-chile-access-research-and-sanitary-registrations","status":"publish","type":"post","link":"https:\/\/bofillmir.cl\/eng\/what-we-talk-when-we-talk-about-orphan-drugs-in-chile-access-research-and-sanitary-registrations\/","title":{"rendered":"What we talk when we talk about orphan drugs in Chile: access, research and sanitary registrations"},"content":{"rendered":"<p>Partner <a href=\"https:\/\/www.linkedin.com\/in\/andrea-abascal-59142a32\/\"><\/a>Andrea Abascal and associate <a href=\"https:\/\/www.linkedin.com\/in\/andr%C3%A9s-sep%C3%BAlveda-31ab161a2\/\"><\/a>Andr\u00e9s Sep\u00falveda, from our Life Sciences practice, published this article for the International Bar Association, analyzing access to orphan drugs in markets like Chile. Despite progress in local research, clinical trial, and the emergence of and orphan drug registry, the lack of comprehensive regulation remains the main obstacle to ensuring access. Proper regulation would not only improve availability but also help reduce the significant cost borne by the State, as many patients have resorted to legal action to obtain treatment, ultimately forcing the government to cover the expenses.<\/p>\n\n\n\n<p>Full article here: https:\/\/www.ibanet.org\/orphan-drugs-chile<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img fetchpriority=\"high\" decoding=\"async\" width=\"1024\" height=\"1024\" src=\"https:\/\/bofillmir.cl\/wp-content\/uploads\/2025\/07\/AmCham-1-1024x1024.webp\" alt=\"\" class=\"wp-image-13021\" srcset=\"https:\/\/bofillmir.cl\/wp-content\/uploads\/2025\/07\/AmCham-1-1024x1024.webp 1024w, https:\/\/bofillmir.cl\/wp-content\/uploads\/2025\/07\/AmCham-1-300x300.webp 300w, https:\/\/bofillmir.cl\/wp-content\/uploads\/2025\/07\/AmCham-1-150x150.webp 150w, https:\/\/bofillmir.cl\/wp-content\/uploads\/2025\/07\/AmCham-1-768x768.webp 768w, https:\/\/bofillmir.cl\/wp-content\/uploads\/2025\/07\/AmCham-1-12x12.webp 12w, https:\/\/bofillmir.cl\/wp-content\/uploads\/2025\/07\/AmCham-1.webp 1080w\" sizes=\"(max-width: 1024px) 100vw, 1024px\" \/><\/figure>\n\n\n\n<p><\/p>","protected":false},"excerpt":{"rendered":"<p>Partner Andrea Abascal and associate Andr\u00e9s Sep\u00falveda, from our Life Sciences practice, published this article for the International Bar Association, analyzing access to orphan drugs in markets like Chile. Despite progress in local research, clinical trial, and the emergence of and orphan drug registry, the lack of comprehensive regulation remains the main obstacle to ensuring [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":13021,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[24],"tags":[],"class_list":["post-13019","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-noticias-bm"],"acf":[],"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/posts\/13019","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/comments?post=13019"}],"version-history":[{"count":1,"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/posts\/13019\/revisions"}],"predecessor-version":[{"id":13022,"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/posts\/13019\/revisions\/13022"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/media\/13021"}],"wp:attachment":[{"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/media?parent=13019"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/categories?post=13019"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bofillmir.cl\/eng\/wp-json\/wp\/v2\/tags?post=13019"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}